You know that moment when you are in the middle of a conversation and people are just chatting, mostly mommies, and then someone says it.  That statement that is a very honest statement, not in any way a dig at you, but it hits you right in the heart.  It’s the moment when you are forced to face how abnormal your life is and how truly NOT healthy your child is.  That minute when the tears come without permission.  Yeah.  I am there.  Someone was talking on a mommy board I am a member of and poof… someone was asking what size their child was and the mom responds with “39 inches and 39 lbs, she’s 2 and a good size girl… we buy a 2 because the shirt is a 2/3 combo”.  Seeing that number 39…………………. I nearly swallowed my own tongue.  At that very minute it was so obvious to me……… it literally took my breath and then the tears came.  Ky is 39 pounds.  39 pounds might as well be the weight of the world right now.  Since we pulled the full time g-tube feeds she has steadily been losing weight.  I am a little freaked out because I know where it CAN land us.  Been there.. more than once.  I don’t want to go back there.. desperately and honestly if the only thing it takes is this stupid tube for the rest of her life then so be it.  The tube is not that bad.  The button is not that bad.  They are comfortable.  Reliable.  They reassure me that no matter what we CAN feed her and keep her alive even if she cannot do that for herself.  But today… a very innocent comment tore at my heart in ways I cannot explain.  And it HURT.   a lot.

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I went through a period where I was ANTI blogging… for so many reasons that I care NOT to get into but … I missed the opportunity to CONGRATULATE our very own Dr. Joe (Iocono) on his appointment as the CHIEF of Pediatric Surgery at Kentucky Children’s Hospital!  Here is the excerpt from the article: [...]

As many of you may or may not remember, on top of having had a child born with life threatening medical issues that we still fight today, in the year 2008 our family’s very livelihood was threatened.  I was pretty proud of us.  We had married young, been through ALL this with Kyleigh and we [...]

On July 13th… Ky turned 5… she wanted an ICE CREAM CAKE, Cupcake.  I think she asked for it because she thought it didn’t exist.  She likes to think up the craziest things to ask for but HAH!  I foiled her!  I found them … at Coldstone! She got an ipod touch (mostly because we [...]

We were again blessed enough to travel back to Negril, Jamaica (for the third time in as many years) to photograph a beautiful couple on the island!  I don’t know how we are lucky enough but we continue to be blessed by these couples with their friendship. This time we were at Sandal’s Negril.  We [...]

Troy and I traveled a bit for ourselves too!  Troy is GREAT at finding tickets to small venues.  He found us tickets to Matthew West at the Billy Graham training Center in North Carolina.  We stayed at the Shepherd’s Inn on the property… there were so many hiking trails and it was so serene… no [...]

Wow… yes its been so long since I blogged… sorry I have been remiss but honestly… we have been too blessed to blog!  Funny right?  Our summer and fall wedding seasons were, without the help of my Heavenly Father, overwhelming!  We were blessed on SO many fronts I don’t know where to even begin.  I [...]

I was making my rounds through some bargain clothing sites where I buy most of Ky’s clothes and shoes and poof… on the front page were THESE: I mean really… have you ever seen anything so cute?!  If bought into the whole Wellies trend I would SO snag these right up.  Unfortunately I love the [...]

Yes… so she can’t ride horses or go cliff diving but the girl CAN DANCE!!!!!!  Her hypermobility in her lower limbs actually make her PERFECTLY built to be a dancer   Mommy is of course, extra happy about that!  I mean really if you are going to have a bunch of junk wrong with your [...]

WHO the kid is in the background who kept jumping in the pics?  I dunno… but every time I turned around there she was!  LOL Between Owen and Ross they cleaned up TEN awards at their end of school awards day!  I am SOOO incredibly proud!  Here are a few pics of the boys receiving [...]