We had a bad day

Today was a hard day in all of our worlds. Going to the cardilogist is not our favorite thing to do but it has to be done. I live in contast fear of hearing what she has to say. Today was not a good day. Kyleigh has entered stage 1 heart failure. She is retaining fluid and her heart is overworked. She frequently stays blue in the hands, feet, and mouth and turns GREY sometimes all over. That scares the crap out of me.

Dr. Cottrill put her on Dioxin to help her heart... and lasics for the fluid to help out her kidneys. She is having a hard time eating still... Zantac doesn't work so we are on to Prevacid. Gurd and Reflux are not a good combo for a baby who is already in pain as it is!

Today sucked most because we had to draw blood to test for anemia. They pricked her heel and then managed to screw up the workup because we had to go back... when they proceeded to prick her other heel and get nothing, then one arm, nothing... then the other arm... and one the last arm they dug around for about 3-4 minutes before I physically pulled the needle out and picked her up and left.

Holding my tiny little princess down while she screamed bloody murder KNOWING how they were hurting her and they could give a shit less...that was WORSE than anything I have had to do so far... the crying, the surgery, the NICU... nothing held a candle to this. Glad the prozac is working overtime today because I really could have lost it!