My dad always said...
When we were growing up and we would say we were "just pissed off"... my dad's reply was always the same. "Better to be pissed off than pissed on". Well what happens when they are one in the same? I am so upset and frustrated with the medical community right now and UK in particular. They are like a monster with a million heads. They expect you to know just how to navigate the system and NO department communicates with any of the others unless you take the file with you. It is becoming a chore to get an appointment made and then lest the whole world falls down I missed one!!!! I totally flaked and forgot one. It was the day after being out of town for the weekend and I totally forgot. My bad. So I call to reschedule. The lady is very snippy and says I will have to take whatever appointment they have open with whatever doctor they can find. Ummm that would be okay for a NORMAL kid. But when you have a child like Ky its kind of hard to start over new and explain the whole shebang to them. Okay fine... this is my punishment I understand and say okay.
Next... to make a follow up with the neurosurgeon. I call - they say that I myself can't make the appt. I need a referral. Oh really? Because I was instructed by Dr.Pittman himself to call her and make an appt. THEN they tell me- well you have already missed one appt. You were supposed to have come right after the MRI to see him. OH HE!! NO. No one called and gave me instructions on having an MRI. I was just lucky that I have had one before and realized that she probably shouldn't eat. No one told me not to wear metal so we couldn't stay in the room with her.... and certainly no one told me that I had an appt because I would have been there with BELLS on!!!! So the lady FIGHTS with me for almost 15 minutes at which point I say- fine... make me another danged appt today tomorrow whenever you have one and I will BE THERE. And have the films ready because I sending them off to someone in Chicago who knows what the heck they are doing!
THEN... oh it gets better! I call her pediatrician. To make sure that when we go for her appt on Nov. 14 they will have her synages shots there. They are $1300 each so I am sure they have to "order" them! Talk to the nurse. Nothing. They did not even know she was supposed to be having them. There is nothing in her chart and they can't order them without doc's orders. And my pediatrician is not the one who ordered them. The cardiologist is the one who wants them. So I call the cardiologist. And ask them to fax her notes over to the peds... they say there is nothing in the notes about them. And that the cardiologist sometimes forgets to write stuff down so they will have to ASK her....
Its like this I didn't even know how to SAY the word synages. I am not making this $hit up. I am not trying to mooch $1300 shots off someone. I am just trying to do what the docs said they were wanting her to do!!!
Is it too much to ask for all of our 7 docs to communicate with each other so I don't have to spend days at a time explaining myself?
This was the final staw... after this I am packing up the records and heading to Cincinnati. I am all but DONE with UK.
Next... to make a follow up with the neurosurgeon. I call - they say that I myself can't make the appt. I need a referral. Oh really? Because I was instructed by Dr.Pittman himself to call her and make an appt. THEN they tell me- well you have already missed one appt. You were supposed to have come right after the MRI to see him. OH HE!! NO. No one called and gave me instructions on having an MRI. I was just lucky that I have had one before and realized that she probably shouldn't eat. No one told me not to wear metal so we couldn't stay in the room with her.... and certainly no one told me that I had an appt because I would have been there with BELLS on!!!! So the lady FIGHTS with me for almost 15 minutes at which point I say- fine... make me another danged appt today tomorrow whenever you have one and I will BE THERE. And have the films ready because I sending them off to someone in Chicago who knows what the heck they are doing!
THEN... oh it gets better! I call her pediatrician. To make sure that when we go for her appt on Nov. 14 they will have her synages shots there. They are $1300 each so I am sure they have to "order" them! Talk to the nurse. Nothing. They did not even know she was supposed to be having them. There is nothing in her chart and they can't order them without doc's orders. And my pediatrician is not the one who ordered them. The cardiologist is the one who wants them. So I call the cardiologist. And ask them to fax her notes over to the peds... they say there is nothing in the notes about them. And that the cardiologist sometimes forgets to write stuff down so they will have to ASK her....
Its like this I didn't even know how to SAY the word synages. I am not making this $hit up. I am not trying to mooch $1300 shots off someone. I am just trying to do what the docs said they were wanting her to do!!!
Is it too much to ask for all of our 7 docs to communicate with each other so I don't have to spend days at a time explaining myself?
This was the final staw... after this I am packing up the records and heading to Cincinnati. I am all but DONE with UK.
2 Comments:
Egads. I know that getting medical staff to communicate with one another is like herding cats, but it sounds like your docs have taken it to the extreme.
We've been to Cincy Children's. It's a good place. The logistical nightmares are much less. Hang in there. :)
Hey girlie...sooo sorry you're having to deal with all of this right now. I know firsthand what a living nightmare it all can be....add in mega expensive drugs and insurance companies...and it's total HELL!
Fortunately, our doctors are pretty great at communicating with each other, HOWEVER, our PITA insurance company MORE THAN makes up for that!
Thinking of you guys...lots of big (((HUGS)))!
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