We have made it. She weighs 12 lbs 1 ounce. Things are definitely headed in the right direction. When we came home she weighed 11 lbs 12 ounces. When she came home we were gravity feeding 3 ounces every three hours. I have worked her up to 6 ounces every four hours. But she doesn’t [...]

We were afraid to jinx it… so we didn’t really tell anyone that we were coming home. It was a BIG maybe- and we were having to WAIT on the insurance company so everyone KNOWS how fun that is. The story goes like this- during Rounds on Monday morning it was discussed that if we [...]

On day 20 we turned out to be a little more normal. Kyleigh actually played with me a little today and didn’t moan as much. We did wake up this morning with another tooth right beside the one yesterday. She now has her two bottom front teeth coming in. I am excited that she isn’t [...]

Our first milestone is that we have been discharged from the CICU. The only problem is as of yesterday we are number five on the list to transfer to the floor. They just came over this morning to say it should be sometime today around noon that we transfer over. We are going to be [...]

I missed Grey’s Anatomy by exactly an hour. I was trying to get some work done and messing with my freakin POS laptop trying the keep the battery on and I look up- its 10:05 pm. I talked to the boys on the phone tonight and now I am entirely sad. I have cried way [...]

Kyleigh got taken off the CPAP machine this morning. Ever since then she has been extremely calm, but still awake. She hasn’t really slept in over 24 hours. They have given her Methadone to keep her going thru withdrawal now that all the narcotics are stopped. She doesn’t want to eat at all. We suspect [...]

Kyleigh was successfully extubated today. They took the tube out and replaced it with a CPAP machine. Most people you visit in hospitals that have canula’s in their nose for oxygen are usually on 1 – 5 liters / minute. This machine is delivering Kyleigh 14 liters / minute and we can hear the thing [...]

Kyleigh has always been the 5%. She was in the 5% for her weight club. She was the 5% of cardiac patients who become septic after surgery. She is the 5% that are hard to sedate and have a fast metabolism. Any time news comes about a possibility and the odds are 5% we are [...]

Its about 10:30 pm. Kyleigh just got all settled in for the night. She is trying to spike a fever but trying to establish that she is feverish is hard because they can never get a good read on her (in other words… no hiney to stick it up!). But they gave her some tylenol [...]

Its been so long that we have been talking about Ky in the third person. Because she cannot speak for herself. I need everyone to know- that after all this is done… we will be okay. SHE will be okay. The more days we spend in here… the less likely it seems that we will [...]