While our good ole Kyleigh is back. She started yacking this afternoon again. She spit up a little before we left for dinner and for Amber to shower. Then we came back and thought she might have yacked while we were gone. So, she ate her night bottle. They came in to give her the aldactone by mouth and right after that she yacked. But she is still eating by mouth almost what they want. I think with the yacking they will probably push for the NG tube, but yacking after eating isn’t going away with a NG tube so if yacking is the problem need to fix that.

I think her congestion is making her a little nausuated and with her easy gag reflex (or her reactive airway) leads to yacking. I hate going back on the prevacid since that seemed to really stop her appetite. Right now I give it a 50 / 50 shot at getting the NG tube back.

Other than that she still looks great and is sleeping well. The pain medicine seems to be working very well. She now only has her central line in. When it comes out she will get another normal IV put back in somewhere for access. She is still on her oxygen, but the rate is less than yesterday. Her pacer wires are still there, but bundled up. She is getting less connected and we are thinking we will be moved off the floor tomorrow afternoon.

The funniest thing today was when Kyleigh got her echo done. She was sedated, but never went to sleep. Instead she just watched her own echo results. She just stared at the screen and then at the stenographer. Very intent on what was going on. When she was done she turned right back to watching TV. All the nurses think it is so funny how she just lays in bed and watches TV. She is such a couch potatoe and that is such a blessing for us.

The Ronald McDonald house is some pretty nice digs to stay at. We came over tonight for the meal that someone usually brings in at night. The recommended contribution for your room is $20 a night so the meal alone pays for the room. Right now I am doing a load of laundry and have internet access in my room. If only the sleeping rooms at the hospital had internet I could have stayed there. The kitchen is huge if I didn’t mention that before.

All in all today was a good day. Tomorrow is shaping up to be even better. Once we get on the step down unit we will probably take some visitors. I know Susan Toon has wanted to come back to check on us and Heather Loehr was thinking about it as well. If anyone comes I could use those Cadbury Mini Eggs in the purple bag. Those are my absolute favorite!!

This setup in Cincy is much better than UK and we are really glad we opted to come up here. Everything is just so geared towards children. It also has been greatly simplified. For example the ICUs are in building B on the 6 floor. Once you get off the elevator there is small waiting room and access to all the ICU units. Then, the units are broken into colocated pods. So, we are in the ICU dedicated to hearts or the CICU. When we come to her heart doctor we go to C3 and go to the Cardiology department. All the doctors, echos, sonograms, etc are done thru that one waiting room. There is no go to the basement for labs, go to this floor for MRI, go to this one for sonograms, go the surgeon’s office here and then come back to see your cardiologist. The hospital was built anticpating the need and not added on to later to meet additional need. So, that makes things much cleaner. We love it!

Thanks again for all the thoughts and prayers. I hope this blog has helped to keep everyone informed and up to date. Make sure you sign up for the newsletter. It goes out everyday at 7:30PM with the latest blog news.

Tomorrow morning I will try and post some more pictures of Kyleigh. We have the one of her watching her echo and one where she is very peacefully sleeping.

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