Kyleigh is doing much better. We actually somewhat slept thru the night last night with the help of her swing. We also got a man nurse who came in and did everything he could at once. So, they only came in twice last night instead of seemingly every couple of hours. It also helps that I put a sign on the door.

Kyleigh still has a partially collapsed lung. They have upped her oxygen again so no signs of going home with that. They are hoping to give her another 24 hours to rest and check it again tomorrow. They also have some concern over her pulmonary flow. It is a side effect of her condition in that the arteries in her lungs are much larger than normal so now that the heart is fixed in order to keep her flowing it has to have a much higher pressure. This stresses the heart. Tomorrow they are going to do a sedation echo and check the pulmonary flow and the repair. They will also start her on oral only pain meds tomorrow. So, if I had to guess we aren’t getting out before Wednesday.

Her system still isn’t regulated yet in terms of her eating. The overnight feeds aren’t going on thru until sometime during the day. But I think now it could be more of her getting used to being full. Before she just didn’t have the appetite nor the means to eat good since she was running a marathon. Now, she can eat a 60ml bottle (2 ounces) without problem. I think that over the next couple weeks we will be able to ween her off the overnight feeds. Also, her body doesn’t need as much as it did before to gain weight since her heart isn’t beating out of her chest.

Currently Kyleigh is asleep on her floor mat that is in her bed. She just passed out with it.
I have ordered myself lunch and Amber is still sleeping. She isn’t throwing up anymore, but she is sleeping a lot. The good side effect is that I just gave Kyleigh some post medicine milk from Amber and I think that is helping her sleep. I also laid her bed out flat just the way she likes it.

All in all I think things are looking better just not as fast as we would have hoped. I am just glad that last night I got some actual sleep. I am downloading pictures right now and will post some this afternoon.

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