Here are some pictures of Kyleigh. When we get to step down and post op day four we will post some pictures of her stitches \ incision on her chest. So you can see she has a foot IV, an arterial line in her right arm, an IV in her left arm, and a central [...]

Today was leaps and bounds over yesterday. She never appeared to be in pain today. She has eaten several bottles, kept them all down, and is on the normal newborn nipple and not the red rubber ones. So, things are looking better. She is off her fluids right now since she is eating. Things are [...]

Well yesterday was very hectic. Basically she did arch her back like the undead all day long. But today appears to be a new day. Late last night they fed her one ounce of pedialite and she went to sleep. Then, the started Dex shortly thereafter and she slipped into deep sleep. At that time [...]

Every single time I think – “oh I have seen the worst… nothing can suprise me” I quickly realize there is always a way to send me back to that place I fear the most. The past 48 hours have been pure hell. Plain and simple. If hell has 7 levels I am in #6. [...]