So… we are officially on the calendar for August 14th for Kyleigh’s next surgery. Dr. Joe is going with us which we are SO excited about!!! We are really very attached to Dr. Joe. He has been with us since the day Ky was born so it seems only right in our world that he [...]

Well I knew it was too good to be true. Sigh. We almost made it to the follow up appt without anythign happening. Ky’s apetite has been dropping off steadily for a couple of days and then it happened… the righteous poo is back. They sent off another stool culture to check for C-diff or [...]

Its that eerie kind of calm and quiet… like things are almost too good to be true. Like any minute a bolt of lightning will tear through the sky and into your life and burn things to the ground. It is so funny to realize that while once you couldn’t enjoy life because you were [...]

Ugh…. the feeding issues! Please god tell me that these feeding issues end soon?!!!! Anyone? I just somehow cannot fathom that an almost 1 year old should be barely eating 24 ounces a day…. at that is pushing it. We are trying to introduce solids but Ky keeps getting diarrhea. She gets it… feels bad… [...]