Well… another day another dilemma. The blackening in Kyleigh’s legs… (oh did I forget to post that?? oh yeah… we have black legs too!) is quite possibly a kinked aorta. I am still not convinced that its not tether cord related but we are working on that. We have gotten some amazing help from all [...]

This was posted to the CHD board that I subscribe too… its oh so true and every time I read it I end up sobbing. You know… I have vowed to not feel SORRY for Kyleigh. She is amazing and strong and is doing great. But can I feel sorry for myself for a minute??? [...]

YAY!!! I think Dr. Levitt was determined to prove me wrong! I told him there was NO WAY we could possibly be out of the hospital in 3-5 days … not with 5% Kyleigh. But truth is… Kyleigh did AMAZING! Our nurse told us that Dr. Levitt made it very clear that we were to [...]

YAY! WE officially have a butthole!!!! And pics to prove it! I haven’t physically seen it yet because I don’t want to be touching it if we don’t have to…. but the surgery pics were pretty amazing! She is tryingt to wake up. You can tell she is in pain. Her cry is diferent. And [...]

Still no word from the ER. Man this is rough… its bad enough to sit and wait with updates… but knowing nothing is killing us! We will update as soon as we know!

Yesterday was a day from Hell. Really and truly. It was probably AS AWfUL as the day we spent holding her down in the ICU. We are all VERY tired and cranky. They irrigated her colon system EVERY hour for 14 hours. That was a nightmare. This morning they came for her about 6:55 am. [...]

Well we are all checked in and got our room. Kyleigh actually likes the bed right now and it having fun. We haven’t started the cleanout process yet, but things are going good right now. We are pretty tired and are looking towards this as a vacation believe it not. On Saturday one of our [...]

You know… generally I TRY to be an even keel person. Really my business has made me a better person, mother, wife and general human being. I now realize that flying off the handle is no way to get what you want. This is my PSA to everyone reading: PLEASE have common courtesy for your [...]

You know opening the mailbox used to be something you looked forward to. Something that you did with childhood wonder realizing that there was someone out there somewhere that thought you were important enough to send you something. A cool postcard, a chain letter…. things that were just fun. And then you grew up. And [...]