Yesterday was a day from Hell. Really and truly. It was probably AS AWfUL as the day we spent holding her down in the ICU. We are all VERY tired and cranky. They irrigated her colon system EVERY hour for 14 hours. That was a nightmare.

This morning they came for her about 6:55 am. We were able to walk down with her to the surgical area.. and I got to hold her as they put her out. She fought till the end as always. Of course none of the anesthesiologists could believe how strong she is.

Dr. Joe and Dr. Levitt have already had a conference this Am and came in to chat and reassure us. Somehow today is harder for me than the heart surgery day. On heart surgery day I had no idea what was coming. I am totally afraid of the inevitable now. It sucks. I know how bad it CAN be and the fear that grips my entire body is starting to be realized by my state of being. There are things in life that you cannot explain or control or plan for. Those things are the things that change you. The things that define you. I know that Kyleigh’s life is a novel that is being written one page at a time but no one told me it was going to be an action story instead of a light hearted comedy. We signed on for the light hearted comedy and got the action and now we are still hanging on by the seat of our pants.

Its now 7:45 am… Surgery is slated for 4 hours with no complications. We will update when we know more.

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