You know I love this blog. And I have to take a moment to apologize to everyone who reads it. I have turned this into a personal sounding board. Spouting off about things that bug me or test my patience. Things that make me sad, happy and everything in between. BUT…. I promised when I [...]
Archive for September, 2007
Sitting in the studio.
Have you ever had those days where you just could NOT make your mind focus on what it should? After all the excitement on Friday and then the anticipation of Monday’s MRI my mind is all over the place!! I am here in the studio… hauled myself out last night to get some Comtrex (thanks [...]
Long day…
After a long day and being sick as a dog… I am too tired to explain right now. But I have had several people email to ask what is going on with Ky’s MRI. good news to report – our amazing Dr. Joe has saved us once again. I dunno if he ever gets tired [...]
Chloral hydrate…. we laugh at you!
Or Kyleigh does! I think because she has been sedated so much it takes a LOT to put her out. When they told they were going to use the chloral I was thinking… YEAH RIGHT… If we go back in the time machine to two weeks after her heart surgery – they put her “out” [...]
7 staples later,,,,,,,
so it begins…
You know what the worst part of this whole journey has been? Its getting to the end and realizing there is no end. You can pretty much make it through anything as long as you know there is an end in sight. But when you get to the end and realize that you have to [...]
Chili’s & St. Jude
Just need a minute…
Its been a long time since I cried over this whole situation. Lately I have really felt on top of things… getting things done in an orderly and timely manner. I have pretty much felt like I understand where we have been and where we are going and how to get there and who to [...]
Been a While
Long Scary Day…
Its been long week, month, year, two years…. The day that Dr.Y sat us down in his office after that fateful ultrasound at 20 weeks… that was the day that changed my life. I knew that everything I had ever known before would go out the door and what would remain would a just a [...]




