Our nurse visited us today. She hasn’t actually been around for several months now and it was actually kind of nice to see her again. She was amazed at how Ky has grown and developed. It was very reassuring to know that she really thought that Ky looks amazing. She has seen Ky since she was at her very worst and sometimes I feel like I have no idea how she is REALLY doing because my view of her is very critical and skewed.

We were discussing next week’s surgery and she asked if we were headed back to Cincy. When I told her that we had decided to stay here she gave me a funny look. It was as if to say that she could not believe that anyone would CHOOSE UK over Cincy. Why does is make me crazy to have chosen UK over Cincy? While the hospital itself may be different than Cincy we are here at home. We have Joe and we have great docs in the PICU… well and mainly Joe. LOL I hope UK realizes what they have in him. If we were the first to choose him and UK over somewhere else I would be REALLY surprised… and if we are then MORE people should. This is OUR hospital.. this is OUR home and we should NOT have to leave our home to find good medical care and we don’t have to. We have found it here and we are really elated.

Her comment to me was “Well, you’re brave…” I told her… ” I am not brave… I am at peace. Even if I went all over the country, I could not have chosen anyone better to do this surgery than Dr. Joe. ” I went on to explain that he had been with Ky since the day after she was born and that I feel like he really understands the vastly complicated being that IS Ky. There is way more to Kyleigh than even the immediate situation and surgery that any professional is dealing with. She is complicated in ways that most do not account for. Joe does… he has listened… and listened… and ACTED on our conversations by being proactive in planning for her care. And THAT is something that money cannot buy. Its something that certainly can’t be found everywhere. She just kind of shrugged and didn’t say anything else after that.

We have met opposition from every single person we have talked to about this surgery. Friends, family, acquaintances, other medical professionals…and truthfully I am tired of hearing it! I can tell you… I have never felt more at PEACE about anything in my entire life. There are those decisions in your life that you make that are a huge leap for you and as much as you KNOW it will be ok you still have doubts…this is NOT one of those. There is a whole TEAM of people awaiting her arrival at UK on Wednesday and it makes me have 100% confidence to know that Joe is handling this. I want what is RIGHT for my daughter more than anything else. Be that here at UK, Cincy, Chicago, UAB, Denver, NYC, SLC, etc…. just because we are at “home” doesn’t mean we will receive cut rate care. Just because we are 300 miles away doesn’t mean that we will receive BETTER care. There is not one single piece of doubt in my body. THIS is what is right for Kyleigh.

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