I swear… I am a total basket case today. Before 10 am I had already gotten Kyleigh up, cleaned up her morning poop, bathed her, pushed all 6 meds, cleaned her g tube site, changed the tubing, changed the formula pump bag and refilled it, dressed, doctored her butt (which is now rashing again), and [...]

You know that “how long will it last” at the end of the post about 4 posts ago… yeah well “it” lasted exactly less than a week. We saw it heading downhill this weekend but tried to keep our “worries” under wraps. Then today… she started puking again. I cannot tell you how my head [...]

We had the privilege of meeting Dr. Bob Owens before today but both times we were in the hospital so it was kind of hard to actually chat with him. Truly we really enjoyed meeting with him. I know that he will do a great job. If Joe trusts him … then I have no [...]

In Memoriam: Our beloved President Gordon B. Hinckley has died at the age of 97….. its a very sad night for everyone of the LDS faith. President Hinckley was an amazing leader and he will be missed immensely. Join us in saying a prayer for peace for his family.

In Memoriam: Our beloved President Gordon B. Hinckley has died at the age of 97….. its a very sad night for everyone of the LDS faith. President Hinckley was an amazing leader and he will be missed immensely. Join us in saying a prayer for peace for his family.

Yes it is alive!!!!!!!!!!!! I can’t believe it!! Thank you to everyone who suggested ways to dry it out!! It is back and nearly fully functional. I am afraid that the camera may have taken a hit but the rest of it is great! I guess that will teach me to take crappy iphone pics [...]

Back to our regularly scheduled programming… (uhhhmmmmmmmmmmmm JOE)……….. Today we had our post op visit with Joe. And he is SOOOOOO going to kill me for posting this pic.. but oh well… “mr megaphone” as Troy calls him… couldn’t stop chattering long enough to get a pic! So… let it be dually noted… even with [...]

Back to our regularly scheduled programming… (uhhhmmmmmmmmmmmm JOE)……….. Today we had our post op visit with Joe. And he is SOOOOOO going to kill me for posting this pic.. but oh well… “mr megaphone” as Troy calls him… couldn’t stop chattering long enough to get a pic! So… let it be dually noted… even with [...]

Today… my boys almost met their maker! I love kids with every ounce of me and generally I can handle their “destruction” but today… oh my. Just let me tell you what. We started out the morning. By the time I got up the boys had already snuck out of their room and into the [...]

Every surgery that we go through and every day older that Kyleigh gets she starts to realize more of what is happening. We spent nearly a month of being exclusively hers and now she is definitely having trouble with being apart from us… she SCREAMS bloody murder when I leave the room let alone leave [...]