Yesterday was a very busy day for all of us. We traveled to Cincy for a Heart Center Family Advisory Board meeting and were able to take dinner to two families in the Colorectal Center. It was a great way to spend the evening and to realize how truly grateful we are that this year [...]

The Chosen Mothersby Erma Bombeck Most women become a mother by accident, some by choice and a few by habit. Did you ever wonder how mother’s of children with life threatening illnesses are chosen? Somehow, I visualize God hovering over earth selecting His instruments for progagation with great care and deliberation. As He observes, He [...]

Sometimes I feel like Owen and Ross are the lost boys. The other day I had someone who was totally shocked that I had OTHER kids… they thought Ky was our only one. It made me think about how everyone hears so much about Ky that the boys fall into the background. I wish they [...]

OMG… the Ditropan is working! Ky had two Dry diapers!!!!!!! I am absolutely floored! Dr. Alam’s nurse emailed yesterday to say that Ky’s 24 hour urine output was high for her age and weight and that they would want to closely monitor that for a while. I asked her what that meant in terms of [...]

To all my photog friends… I bet you have never used your softbox to read xrays!!! LOL I have to give credit to Joe on that one… I was going to drop the xray to him and then he asked… “Don’t you have a lightbox or something?”… I mean what does he think I am [...]

To all my photog friends… I bet you have never used your softbox to read xrays!!! LOL I have to give credit to Joe on that one… I was going to drop the xray to him and then he asked… “Don’t you have a lightbox or something?”… I mean what does he think I am [...]

OMG… we are TWO days into the new cathing routine and Ditropan in the CATH instead of by mouth (errr…. tube) and I swear… if I did not know better… I would think that she is already showing signs of improvement!!! Maybe its just me hoping beyond hope that this is our answer but this [...]

In the words of the ever famous Jen Hillenga “I’m having a torrid love affair with Panera souffles!!!”….. D@mn you Kimberly Smoot for getting addicted to these stupid things! And ANY time you go to Panera on the weekend they NEVER have the ones you want! But I cannot complain because in Springfield they never [...]

Sigh… I don’t know exactly what we accomplished. We were in Cincy from 7 am – 5 pm and MAN that was a long day. Ky was cranky and pissed off… with good reason. Our main issue is that the Ditropan we are giving her to protect her kidneys and keep her bladder from having [...]

Holy WOW… what a week. We made it through the most intense photography conference that we have ever had the privilege of attending! Conventions are always FUN but rarely are they this intense and packed with SO many amazing speakers! Our heads are literally reeling from all the information and inspiration. This particular one had [...]