Okay so I have taken off from posting a long time. For the longest time I have made myself numb to what is happening. Well a lot of things are happening for our family and myself as well so I am starting to deal with it. Not to say that I haven’t been dealing with [...]

I never imagined that our lives would lead us here but like so many other things in our lives and Kyleigh’s we are learning to accept help and to EXPERIENCE the kindness of strangers. Its amazing and wonderful and humbling. Today we received a box in the mail that contained a scale, two matress sheet [...]

Sorry I haven’t posted in a few days….I have been going on the philosophy of… if you can’t say anything nice… don’t say anything at all. To be 100% perfectly honest there comes a point when you cannot see the light anymore. Every day is a new disaster or struggle or pain. You keep thinking [...]

When did I become Karma’s whipping boy? I mean really… what have I done in my life that is so bad that hellfire and brimstone shall rain on me for the duration?? What was the peanuts character that had the rain cloud that followed him?? I am beginning to think that is me or Ky… [...]

Seriously… I just want to shout… GIVE ME A BREAK! Not a broken leg or arm or cracked skull kind of break… like a GOOD “catch a break” break… LOL So tonight Ky and Ross are playing outside and I hear blood curdling “I am hurt” screaming crying… I know its Ky and considering that [...]

Seriously… I just want to shout… GIVE ME A BREAK! Not a broken leg or arm or cracked skull kind of break… like a GOOD “catch a break” break… LOL So tonight Ky and Ross are playing outside and I hear blood curdling “I am hurt” screaming crying… I know its Ky and considering that [...]

Ok… I have been such a Debbie Downer for the past few days… time for some GOOD news! Yesterday I received a note from someone who is a friend of a friend. I literally burst into uncontrollable tears when I read it. Hi Amber,We have never met but I have read, and reread all of [...]

I am more overwhelmed and frustrated today than I was yesterday and than I was the day before. We discuss so many things at these appointments that I have to makes lists to make sure I get things done. If I do not write things down then I forget or get things mixed up. Not [...]

You know the old Kenny Rogers Song… “know when to hold em, know when to fold em…. know when to walk away… know when to run…” I swear….. when is it time to fold em and run? I have to make this post because if I don’t then I might literally go crazy….. I am [...]

Great friggin heavens… I had a Bridal Show today and about 2 hours into it I get a TEXT message from my little sister saying CALL MOM – 911 911 911… My parents were watching Kyleigh and evidently she was outside playing when she got her g-tube tubing caught on something and yanked the whole [...]