Well Kyleigh is back to her normal vomiting routine. She definitely still cannot handle any amount of volume in her stomach. Bolus feeds are completely out of the question. If she eats food it backs her up and then it comes back up. So while I feel like we have DONE many things and unearthed [...]

I know that Kevin is officially hating me now! Its ok though… see I told you to go to Kidz Nook after the Clearance sale. Look what I found there today!!!!!!!!!!!!!!!!!!!!!! OMG. I saw it and was just LOVING it. Of course Ky HAD to have one (birthday present) and I just know that Meck [...]

I know that Kevin is officially hating me now! Its ok though… see I told you to go to Kidz Nook after the Clearance sale. Look what I found there today!!!!!!!!!!!!!!!!!!!!!! OMG. I saw it and was just LOVING it. Of course Ky HAD to have one (birthday present) and I just know that Meck [...]

After a hard days work on Saturdays at weddings we often TREAT ourselves to Panera on Sunday mornings. If I am up early enough we try to get there before the Souffles are gone but that doesn’t always happen. Today was a lucky day! Souffle’ day!!!!!!!!! Although they did not have any 3 cheese – [...]

After a hard days work on Saturdays at weddings we often TREAT ourselves to Panera on Sunday mornings. If I am up early enough we try to get there before the Souffles are gone but that doesn’t always happen. Today was a lucky day! Souffle’ day!!!!!!!!! Although they did not have any 3 cheese – [...]

The Children’s Miracle Network Radiothon for the Kentucky Children’s Hospital will be held August 21-23, 2008. Today we were HONORED to be invited to tell Kyleigh’s story in preparation for the Radiothon. We had an interview that was about an hour that will be cut and spliced into 3 minutes or so of a “montage” [...]

I have found great comfort in frequenting parent boards and socializing with other parents who have kids with special needs. Whether their issues are the same as Ky’s or not it still is a comfort to know that there is someone else out there dealing with a life less normal. On one of the parent [...]

Yes, although she is still totally opposed to being cathed herself, she is very interested in cathing if that makes any sense at all. She caths the baby many many times a day… today she managed to get into the drawer that holds the syringes and she was making sure that the baby got cathed, [...]

Yes, although she is still totally opposed to being cathed herself, she is very interested in cathing if that makes any sense at all. She caths the baby many many times a day… today she managed to get into the drawer that holds the syringes and she was making sure that the baby got cathed, [...]

Kyleigh has taken to wanting to “read a book” in the morning while waiting on me to get her changing table ready and set with meds, cathing, feeding pump etc. Of course her favorite is none other than Curious George! “Monkey Book mommy!!!” Yes Sissy that is a monkey book. “mmmmmmmmmonkey” Kyleigh is now officially [...]