I am currently too tired to recount the whole story of yesterday that carried over into last night but I will write it out soon enough. For right now I just have to take a minute to say how extremely thankful I am to be here at Kentucky Children’s Hospital. If we had had to experience the past 24 hours anywhere else I would have been a wreck and would have needed some sedation myself. Somehow KCH isn’t quite like a hospital to us anymore… its more like home. I guess on so many levels that is sad but on so many others that is truly amazing. I know that I have said it over and over again but I feel that I must continue to spread the word because our hospital has a bit of a “bad rep” in many parent circles.

I cannot help but find myself in tears as I try to describe the amazing compassion with which our medical team treated our baby girl. We have experienced bad doctors, good doctors, even excellent doctors at multiple children’s hospitals. In the past 24 hours I have learned that there is some level of caring for patients that exceeds all expectations. There truly is another level of care and we are lucky enough to have experienced it.

I have told you all many times before the amazing stories of “Dr. Joe” and his team. I have told of the wonderful nurses. I have bragged about the amazing anesthesia team. Yet I still don’t think anyone quite understands what I mean when I say THANK YOU. When I pass by these people in the hallways and say Thank you there is so much that I would like to say but would look like a raving lunatic if I actually did.

These people… they come into your life at the most awful time that one could possibly imagine. They see you at your most vulnerable moments and in dire pain. They truly try to take a few steps in your shoes and understand what you are going through. They reassure you that everything will be okay and they ask you … how are YOU doing. Because yes they care for your child is amazing and wondrous ways but in caring for a sick child you are also caring for the tender heart of the parents who are broken inside because they cannot help their child. I truly believe that the connection between a parent and child is something that is very much understated. When I am stressed… Ky is stressed and I know this. I try my best not to be but under the circumstances it is inevitable. So having someone who takes just two seconds to make sure that Troy and I are ok … really and truly makes a huge difference.

I am way too tired tonight to say eloquently enough what I want to say but I must find the time to say thank you to everyone who has touched us in the past two days and who have refused to leave our princess’ side when we could not be there with her. You will never understand what we are trying to say when we say Thank You… yet we will continue to say it anyway.

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