Currently I am sitting in Room 433 of Kentucky Children’s Hospital. Its wild how you can walk into a hospital and feel peace. The past 48 hours have all been a blur. Long story short Ky started bleeding from her rectum last night about 6 pm. I called Joe and couldn’t get in touch with Megan and we agreed that she needed to be admitted. She had not kept down any feeds for almost a week.
After a consult with GI today (Dr. Shashi) we know that she is looking a little anemic. She is still having blood and they believe that she has both C-diff and Enterocolitis. We are going to do ABX for three days and if by then she is not responding well then Shashi wants to scope her.
I once again have to say how touched I am by the compassion and open arms with which our amazing staff on 4 East receives us. We arrived to have a room already waiting with everyone there and ready to get cracking. In under an hour Ky already had her labs drawn, urine culture, stool sample, IV fluids going, xrays, and was sleeping peacefully with her narcotics. I am so very thankful for Kentucky Children’s Hospital and everyone in it. I don’t know WHAT we would do without them. I mean even my favorite food service guy came in to check on me this morning to make sure I didn’t want breakfast. (I am still to ill over the whole OTHER situation to eat)
So, basically Ky is one sick puppy. She is hurting pretty badly. But my guess is anyone pooping blood does hurt badly. They have fluids going, and we have restarted pedialyte feeds in her gtube. Her transverse colon is again dialated ( which I knew ) but it looks like the UTI may be gone!!!
So… say a prayer for us! And if you are anywhere near the hospital stop by and say hi. We would love to have visitors!
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Hi Am,
Finally! I have checked this blog 10 times today!
We all know that YOU will take very good care of Ky, JUST AS YOU ALWAYS HAVE! You know her completely.
PLEASE, EAT and take care of Amber too! If you get sick, there will be no SAIN person left to take care of the the three amigos. I call you super woman! LOL!
We ARE praying and my head has pounded for a week just thinking of your stress! Been there, done that..Sigh..
Wish I lived closer…I love you. Please let me know what you need. Call me if you want to SCREAM-I can take it!!
YOU DESERVE THE BEST!
Sybil
Amber,
You are in my thoughts & prayers are you continue to go thru a rough time. May the Lord give you comfort & encouragement, Ky comfort & healing and the docs & staff wisdom & compassion as they try to determine the best course of treatment.
aka on SJ sasha728
Amber,
I hope things look up for you and ky soon.
Thinking of you, hoping you are okay.
I was worried when I kept checking your blog and no update. Glad you are at UK childrens. I know they are taking great care of her! Ellie and I have kept Ky in our prayers!
Mindy
Hi Amber,
Sorry to hear you are inpt again- but not surprised I guess
When it rains it pours!!!- We are in that situation too. Still sending prayers your way- for peace and for Ky’s healing.
Much much love to you!
Jessica
http://www.caringbridge.org/visit/eithenerosehilliard
You have my prayers.
Yippee yeah- on the UTI being gone. But so sorry to hear everything else is messed up for Ky. Glad to hear she is being treated like the princess that she is. Our thougths and prayers are with you and Ky.
And dang- I wish you could send that food service guy our way- we just got our breakfast and it’s already time to order lunch! That’s what happens when you aren’t working for tips…….
Lori
http://www.caringbridge.org/visit/benjidennison
Don’t make me come over there an tube feed you! Hell, I’m sure it wouldn’t take much to get Dr. Joe to put you under and give you a g-tube. Don’t try me!
Seriously, take care of yourself so you can take care of your family.
Hugs,
becca
Oh Amber…I am sitting here with a lump in my throat. I am so upset that you guys are back at KCH…..my heart breaks for little Ky.
I am praying hard for that little angel girl.
I WISH I was close enough to swing by…I’d love to stay and keep you company and LOVE ALL OVER KY!!