I am truly exhausted! Its been a long weekend after a long week of traveling and with two clients this weekend I felt like I had no down time. Please pray for a good report because tomorrow we are off to Cincinnati to meet with Dr. Alam (and hopefully see Benji and Lori!) for Ky’s semi annual kidney ultrasound / VCUG / Urodynamics / Renal Profile… and the list continues. I am hoping that he will also do another nuclear scan to check on her function. And more hoping that the bladder continues to look better than it used to. I just cannot handle going a step back to where we were this time last year.
I do think the ditropan is helping now… not a TON… my kid is nowhere NEAR dry in between cathings and cath amounts are generally small. I know that she still constantly leaks urine which makes me think she has little to no feeling in that muscle but… who knows. I can hold on to hope.
I promise I will post pics of Jamaica soon and a report from Alam. But tonight I am collapsing… sigh.
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