I found this little You Tube movie mentioned on another blog and I had to go find it.  I had NO IDEA how powerful it would be.  Its a little long but totally worth it!  One thing that I am starting to realize is that I am NOT defined by my life, my actions, things [...]

I feel, in so many ways, absent.  Absent from life, from happiness, from myself…. I wonder how it is that a person who has been SO close to God can feel so close and so dependent and yet so FAR away at the same time.  I have said it many times before but so many [...]

When I talked to my neurologist about my PAIN that is what he had to offer me.  “Do you think you could be depressed?”  Really buddy… ya think?  I have NO idea what I have to be DEPRESSED about other than the fact that my brain is completely crapping out on me, I am locked [...]

So many people struggle daily with illnesses that alter their lives yet because you cannot SEE them they go right on through life with everyone expecting them to be “normal”.  My illness is literally “all in my head” and throughout the Chiari community you will find that the number one sentiment is frustration due to [...]

Although I thought there were more entertaining acts in the Top Ten … I will honestly say that there was no more DESERVING performer than Kevin Skinner. Watching the show the first time he was on stage and how everyone LAUGHED at him…. it just broke my heart!  I am SO incredibly proud to be [...]

So many people struggle daily with illnesses that alter their lives yet because you cannot SEE them they go right on through life with everyone expecting them to be “normal”.  Kyleigh is a double edged sword.  While I am so thankful to not have people staring and making fun of her for having outward afflictions [...]

I just need to rant for a minute.  I understand that everyone is constantly in a rush.  Needing to get from here to there and five minutes ago.  Yes.  I get it.  But lets get real people.  New Circle Road (also known as Circle 4 and some other name that a guy was asking for [...]

Tonight was the Art of Making Miracles for the Makenna Foundation.  I cannot tell you how much I enjoyed being there, doing what I do, enjoying the September air, the food, the company.  It was great.  I have only photographed one wedding since the ominous “diagnosis” and my meds were not titrated correctly yet so [...]

To set the scene I was photographing a wedding with Amber and was up on the altar hiding out in my camping spot waiting for the ceremony to start.  I don’t usually make it a point to know the specific order of things for the ceremony as they all go in generally the same order [...]

I know that I have talked about Miss Eithene many times before.  Her mom, Jessica, and I have spent many late nights chatting about how our girls must have been separated at birth.  Eithene is still struggling with a great many issues and in light of my recent breakdown about germs from school I feel [...]