Comments on: September 14-20 is Invisible Illness Week.- Kyleigh’s Version

By: Heather B

Heather B — Thu, 21 Jan 2010 15:48:47 +0000

I don’t know where to Start!!
My life is dealing with Invisible Illness and the people who say “I look fine”, it drives me nuts! Exp. when it’s my own family and friends. At the hospital is a whole day experience because I’m a guinea pig; students come in to look me over. They never find out what I have. Also many doctors don’t know themselves! Also saying the name wrong once pronouncing it Vater like “Star Wars”! My whole life is revolved around my illness and trying to live a normal life. Yet I know I’m me and for a reason I’m learning from this. I know God created me this way to help others. There are so many things I would love to share and talk to you about!! We have so much in common “with Ky” I would love to chat sometime. Where do you live? I think we live close to eachother. I cannot believe all the things we have in common. It’s so difficult for me to find someone who understands, which you probably know yourself! I also have a facebook page under http://www.facebook.com/home.php?#/?ref=logo
God Bless, All My Prayers and Hugs, Although we don’t know eachother I feel as though I do? I hope that doesn’t sound creepy. Yet we are both christians. I pray your day is full of joy and healthy family. I also challange with Fibromyalgia “chronic pain” as you do! So we have much in common! Sorry for the very long letter. I have so much to say I guess. LOL.. Heather

By: barry gorbes

barry gorbes — Wed, 20 Jan 2010 10:31:59 +0000

Been searching for awhile for something like this great info very useful.

By: Leslie

Leslie — Sat, 19 Sep 2009 17:02:39 +0000

I love this post! Came over form Somebody needs a nap. Thank you for your comment over there as well. I think we think ALOT alike. I like Jessica’s line of thinking as well!

Leslie (Proud and BLESSED Mommy of a little girl who would not fit the criteria mentioned on above blog)

By: Tricia

Tricia — Wed, 16 Sep 2009 16:29:51 +0000

Wow! Praying for you and Ky.

By: Jessica

Jessica — Wed, 16 Sep 2009 00:45:53 +0000

Well Said Amber! Kyleigh is certainly a miracle, and her story helps people realize that so much more than meets the eye can be at work in ANY life!

And, guess what we got today? Your package!!!! I’m not sure who is more excited- me or Eithene…

By: Leah

Leah — Tue, 15 Sep 2009 21:33:58 +0000

Thanks for all the facts about Kyleigh and somewhat of a day in the life. The crud is definitely going around here, luckily what Perri and I got wasn’t that bad, but my parents and Craig (my husband) got the worst of it. Eek!! She is still crying most of the time when I leave her at the child watch at the gym or at church but these past few days she has quickly gotten over it and had good reports!! Yayyy haha. Let’s hope she keeps it up. I think of you and your family often and your difficult situation and hope you know that you are in my prayers, as I am sure that you are in many other’s prayers. I can’t imagine what you guys go through on a daily basis, but know you are a very strong, Godly woman and I greatly respect you for all you do, as well as your honesty in your blog!