I have been following the Owens family for a bit now.  Their beautiful son, Gavin, has mitochondrial disease.  Tonight Gavin is taking, what are likely to be, his last breaths.  His family are saying their goodbyes and praying that he is released peacefully into the arms of his Savior.  Everything in me hurts……. for this family.

Our life exists in a world where children die…. daily.  Its a community of parents who understand each other because we watch our kids fight to live.  We pray and do what we can and then we release them into the arms of our Savior and allow HIM to carry them, to heal them or to take them home.  This world is a world we were thrust into without our permission but in the world of Emily Pearl Kingsley : “But there’s been a change in the flight plan. They’ve landed in Holland and there you must stay”.  We are faced, daily, with the brevity of life and the sanctity of days, hours and minutes.  Each time I hear of another family whose angel earns their wings I tiny piece of me dies.  I wonder so many things like why Kyleigh was chosen to stay while others were called home….  I truly understand that our lives are all on borrowed time and each time I see another angel like this it makes me hold my kids a little tighter and appreciate them a little more.

Please pray for peace for Gavin and his family.  Pray that he will enter the arms of our Heavenly Father without suffering and that God will wrap his arms around his hurting family as they say goodbye.

If you would also remember our little friend Eithene in your prayers tonight I would be eternally grateful.  Eithene is Kyleigh’s “sistah from another mistah” if you will.  She and Ky were born within days of each other and have traveled a long road fighting VACTERLS and all its incarnations.  Eithene is back in the hospital and had an extremely LONG time in the OR this week.  She is having a hard time in ICU recovering.  Eithene is allergic or tolerant to MANY meds and due to her GI status cannot have many others so finding a way to treat her pain is hard.  It absolutely tears me up inside to know that these kids not only have to go through all these surgeries but have to HURT also.  Its like the least we can do to make sure they are not in pain and then sometimes even THAT is not possible.  I just don’t understand it some days… some days like today it gets the better of me.

So please, tonight pray that Eithene with sleep and rest peacefully and PAIN FREE!!!  Pray that Jessica (her mommy) will be strengthened and blessed with peace and grace to continue to fight for her daughter.

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