Yes, as we continue our Spring Cleaning adventures we are also giving Kyleigh her own room again.  For a great many reasons.  My heart really wanted Ross to have his own room but to be honest with you… he would be lonely in his own room.  He has always shared a room with someone (as [...]

or deconstruct two bedrooms…rip out the floors, demolish large closet,  lay new floors, sell bunk beds, build NEW built in beds, overhaul Kyleigh’s linens, reconstruct two smaller closets flanking bed and completely remodel two rooms of our house.  Yeah…that’s our style.  That’s how we roll with spring cleaning!  ROFL.  Think I am kidding?  Nope… not [...]

The past two weeks have been a typical example of our life and what I like to call “Riding the Waves”.  Much like the waves of the ocean, Kyleigh’s health comes, and go, in waves.  She will have a period where she does REALLY well and then like the tide, her health seems to recede.  [...]

Because I know everyone is probably jonesing for some new pics of the kids… and since we of course bleed UK Blue (no… none of that DUKE blue Charity my dear…) here are the latest pics of the kids… Wildcat spirit and all! And yes… you cannot see it but Owen has on a “UK” [...]

That is the verdict from today’s Cardiology visit.  There is a definite “murmur” in her heart from the mitral valve regurgitation but her cardiologist says that this is to be expected and is fairly common in most kids.  Also, in some kids, it will heal itself.  It is very likely that Kyleigh, having had such [...]

This is a question that was posed to me by a dear friend Thursday night.  It really made me think.  This friend of mine also happens to be a person I respect in ways she will never understand.  She is a mother who lost her baby girl years ago.  Her daughter was about Kyleigh’s age [...]