
Yes… so she can’t ride horses or go cliff diving but the girl CAN DANCE!!!!!! Her hypermobility in her lower limbs actually make her PERFECTLY built to be a dancer
Mommy is of course, extra happy about that! I mean really if you are going to have a bunch of junk wrong with your body, the one time it is advantageous you have to be happy about it! Back in May she performed her first dance recital on the stage of the Lexington Opera House. She was amazing! I cried… of course. We wondered if we would ever get to see days like that and every single one that we GET … makes us appreciate every single second!










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Hello
I was recently diagnosed with chiari, and now my children are also showing symptoms. I came across your blog online, and was hoping you could possibly contact me. We seem to have a lot in common – I am a Christian, budgeting, homeschooling mom of 2 little girls. Anyhow, I know it’s weird since I don’t know you, but chiari seems so far to be a pretty lonely disease, and I would love if you are able to talk with me. Especially since you also are a follower of Christ. I’m finding it difficult on painful/scary days to keep the correct perspective.
Praying for your family.
Nicole
Nicole… I emailed you!
Sorry it took me so long!