I have been nearly silent on this blog for a good while now.  For a great many reasons I felt the need to just “be still”.  Mostly because in my prayers to my Heavenly Father I felt Him telling me to be quiet, be still, just wait on HIM.  So i did.  I stopped talking. [...]

I was standing at the bus stop discussing the latest Walgreen’s deals with our next door neighbor and I told her that there was a huge Huggies deal and I was SO excited because I was able to stock about 25 packs (enough for roughly 6 mo of Kyleighness) for less than $150!  Now, this [...]

So many people struggle daily with illnesses that alter their lives yet because you cannot SEE them they go right on through life with everyone expecting them to be “normal”.  My illness is literally “all in my head” and throughout the Chiari community you will find that the number one sentiment is frustration due to [...]

So many people struggle daily with illnesses that alter their lives yet because you cannot SEE them they go right on through life with everyone expecting them to be “normal”.  Kyleigh is a double edged sword.  While I am so thankful to not have people staring and making fun of her for having outward afflictions [...]

My little sister came over to babysit on Friday night so Troy and I could go on “date night”.  With wedding season bearing down on us its been over a month since we had a DATE!  We have vowed to never let ourselves go “dateless” again because we realize how important it is to maintaining [...]

Remember when I posted about Bentley?  She is the little girl who had a heart issue similar to Ky’s.  Bentley had Tetralogy of Fallot.  Kyleigh had a duke’s mixture of sorts of AV Canal and Tetralogy of Fallot.  Basically Ky’s heart was just REALLY a mess and they had no real term to call it.  [...]

I find some of the most amazing blogs. Crystal’s daughter, Bentley, has Tetralogy of Fallot. Bentley was diagnosed at 2 days old and will be having her open heart surgery in May. Her blog really struck a chord with me because after surgery, Kyleigh’s cardiologist told us that what Kyleigh had was actually a half [...]

When is a child considered “Special Needs” or “Disabled”. When we look into the definition of these two terms, the dictionary define them as this: dis⋅a⋅bil⋅i⋅ty lack of adequate power, strength, or physical or mental ability; incapacity. a physical or mental handicap, esp. one that prevents a person from living a full, normal life or [...]