Today will be yet another day that will change our lives. We have known it was coming for a while now but had prayed and hoped that it was not true. My mom always said, if God gives you a lesson to learn and you don’t learn it the first time, you get to do [...]

It started with Kyleigh spiking a 102-106 fever this weekend. It was controlled with tylenol so I just let her be. THEN Sunday night I had a little sore throat, nothing horrible, and I woke up at 3 am with my throat swollen so large that I could barely breathe. I got up and took [...]

Yes sorry the pics of Kyleigh’s Dedication (a la Kevin Adams) shall be forthcoming soon!!! Today has been a not so good day. I spent all day doing surgeon stuff for me (for once) and got no good news to share unfortunately. Tonight after poking prodding and a half gallon of ingested barium I am [...]

Kyleigh is doing much better. We actually somewhat slept thru the night last night with the help of her swing. We also got a man nurse who came in and did everything he could at once. So, they only came in twice last night instead of seemingly every couple of hours. It also helps that [...]

Well yesterday was very hectic. Basically she did arch her back like the undead all day long. But today appears to be a new day. Late last night they fed her one ounce of pedialite and she went to sleep. Then, the started Dex shortly thereafter and she slipped into deep sleep. At that time [...]

Well… in the last 48 hours I feel like I have been to hell and back and to heaven and back and now I am lingering somewhere in the middle of a semi-drugged and hypnotic state. It amazes me that a mother can find within herself the strength of ten men, the patience of job, [...]