Another horrific night in the hospital. It was only the 5th level of hell this time. Now we have to decide what makes her go ballistic like she did last night. She pulled the exorcist out of the bag again and none of us slept for more than 3-4 hours. Hell I tell you… pure hell. This time we weren’t holding her down but she was still visibly in pain, upset or some other form of crazy. They just rounded and consensus is.. we will not be coming home today. Sucks… in the worst way. But I knew after last night that it probably wasn’t happening. They have decided to put the 0xygen back on and we will more than likely go home with that. Dr. Eghtesady said that Dr. Cottrill (our cardiologist at home) could ween her off that in a few weeks. Her echo did look a smidge worse but not much. So I think it is back to the drawing board with oxygen and x-ray, echo… rinse lather repeat for 24 hours.

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I sure hope this doesn’t jinx us but all signs point to us coming home tomorrow!!!! They are doing another echo today, the oxygen is already gone, they will pull her central line (IJ), and her pacer wires today. Tomorrow we will have an x-ray and then we will be ready to head on home! [...]

Well today turned out to be some kind of normal. Kyleigh ended up eating 300 cc (9 ounces) on her own from 10 to 8. That is nearly right on what they want her to eat. Right now we are still on the night feeds though. I am thinking once we get home I will [...]

Amber and I aren’t going to post a sampling of all the pictures we took until we are out of here. But I can show you what a nut she was right before she went back and then one of her snoozing today. So far this morning in 4 hours she has eaten 120 ml. [...]

Kyleigh is doing much better. We actually somewhat slept thru the night last night with the help of her swing. We also got a man nurse who came in and did everything he could at once. So, they only came in twice last night instead of seemingly every couple of hours. It also helps that [...]

Always good news and bad news. The good news is that we got released to the step down unit yesterday. The bad news is Kyleigh cried out nearly every hour from the time we got transferred and all night long. Also someone screwed up her NG feeds the night before and she didn’t get disconnected [...]

While our good ole Kyleigh is back. She started yacking this afternoon again. She spit up a little before we left for dinner and for Amber to shower. Then we came back and thought she might have yacked while we were gone. So, she ate her night bottle. They came in to give her the [...]

This morning Kyleigh got her arterial line out. Even though it was stitched in she wiggled and moved and flicked until she got it disrupted. When they took it out it took almost three hours of pressure to stop her bleeding. At one point the nurse was holding it for 30 minutes straight before checking [...]

Here are the boys right now. The boys are having fun spending time with Julie and Christy. They even took time to check out Sissy on the blog. You can see Owen of course telling Ross something about it. We are just glad that Julie and Christy were able to come in and give our [...]

Well Kyleigh has ate us out of breastmilk here. So, we have made the call for some frozen stock from home. She is still on the normal nipple and hungry as a horse now. With any luck we can be off the NG tube and night feedings soon. It is so weird to have a [...]