Our first milestone is that we have been discharged from the CICU. The only problem is as of yesterday we are number five on the list to transfer to the floor. They just came over this morning to say it should be sometime today around noon that we transfer over. We are going to be [...]

Kyleigh was successfully extubated today. They took the tube out and replaced it with a CPAP machine. Most people you visit in hospitals that have canula’s in their nose for oxygen are usually on 1 – 5 liters / minute. This machine is delivering Kyleigh 14 liters / minute and we can hear the thing [...]

First off we are intubated and sedated to sleep until Monday. Why is there such a problem with her lungs, being intubated so much, them brachiospasming? Anyone that saw Kyleigh before the surgery knows she breathed pretty fast and somewhat shallow. Before the surgery for her heart to properly profuse her body it had to [...]

Well today turned out to be some kind of normal. Kyleigh ended up eating 300 cc (9 ounces) on her own from 10 to 8. That is nearly right on what they want her to eat. Right now we are still on the night feeds though. I am thinking once we get home I will [...]

Kyleigh is doing much better. We actually somewhat slept thru the night last night with the help of her swing. We also got a man nurse who came in and did everything he could at once. So, they only came in twice last night instead of seemingly every couple of hours. It also helps that [...]

Well yesterday was very hectic. Basically she did arch her back like the undead all day long. But today appears to be a new day. Late last night they fed her one ounce of pedialite and she went to sleep. Then, the started Dex shortly thereafter and she slipped into deep sleep. At that time [...]